Peyronie’s disease

Peyronie’s disease. Why is this the first time I’m hearing about it? Two days shy of our 6 month anniversary? If you look it up, prognosis isn’t good. It’s like a cross between atrophy and severe arthritis. In your dick. When we first began dating I thought “It’s just E.D.  E.D. is treatable”. But it’s not “just” E.D. He’s got E.D. on top of extreme curvature and shrinkage. It’s three inches of gnarled, flaccid dick that is never ever going to be able to physically “get in there”.

If you ask me if knowing this 6 months ago would have changed my mind about pursing the relationship, damn right it would. So now what? For couples too emotionally invested to cut it off, what happens? Do they become swingers? Does he just look the other way while I go scratch an itch for a vigorous deep fuck every few months? I told him if he was with a woman who only cared about cunnilingus, he’d be set. As I said before, it’s a nice appetizer but that’s not a satisfying meal. Neither is a vibrator. And after the trauma of sodomy in my early twenties, ain’t nothing going up there that isn’t a real cock.

His tag line in most of his messages to me is “I’m not giving up on us” and I’m ashamed to admit I’ve begun to resent that. Because this isnt working for me. Yes, I love him and if we could have sex, I might have even seen myself spending the rest of my life with him. But I told him when we first began dating that sex could be a deal-breaker. Like an asshole, I’ve had to remind him over the months whenever he got silent on the subject. Typical ostrich of a man: stick your head in the sand and pretend everything is great. We can just spend the rest of our lives in a sexless, cuddly marriage.

My trusted agent (who fucks around about once or twice a year because he’s desperate and married to a woman who wont have sex with him) says, “You’re not a bad (horny) person. You don’t break up with someone for frivolous reasons. This reason is not frivolous.”

What would you do? I’m tempted to open up the comments on this to get a stranger’s advice because I’m lost. Youre young. At your sexual peak. Sex still vacillates between the number one and number two position in importance in a relationship. And the person who has been better to you than anyone ever has been cannot give you sex. What do you do? Cheat? Break up? Live out the rest of your life in stoic celibacy?

If you chose the latter then clearly sex is not that important to you.

He seems to think that we can work around it. With toys. He says “We can work on us” and I resent that statement to. There’s nothing to “Work on”! Your dick is broken! This might work for you but it doesn’t work for ME! I’ve been masterbating through most of our 6 month relationship to men other than him because what is the point in fantasizing about being fcked hard by someone incapable of it? Again, I’m ashamed to admit (and I’d never admit it to him) that I’m not even sexually attracted to him anymore.

Do I sound like an asshole because I feel like one. A selfish asshole.

I recall a guy I dated briefly a few years back. We had sex once and he was so small he couldn’t get inside me. I joked later that it was a brief lesbian relationship. Because while I debated whether or not his lack-of-dick was a deal-breaker, he decided he was too afraid of me and my “job”, so he disappeared and I was let off the hook.

Another guy a few years before that, we started out dating and within the first two attempts of having sex I thought “No, no no this is not going to work”. But every time I tried having that conversation, he flipped out and threatened to kill himself. Bipolar, raging alcoholic and pathological liar but other than that he’s a great guy! And I cared about him enough that I didn’t want to risk him doing anything stupid. So I stayed with him, celibate for. almost three years until HE was ready to move on. Now he’s married with two kids and we’re still friends. But I wasted years of my life doing what I thought was the right thing. For someone else.

I don’t have years. I don’t want to be in a celibate relationship. I don’t want to be in a lesbian relationship. I don’t want to be in an unsatisfying sexual relationship.

This isn’t working for ME.

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“I like that you’re broken, broken like me” ~LovelyTheBand

I feel every bit of my ill-fitting, worn out clothes today. Dangling threads, scuffed heels and hair as overgrown and unkempt as my yard. I’m dressed in insignificance with all the authority and value of a temp receptionist. But my new coworkers have learned to come to me for IT-related problems because it’s usually a simple fix and I’m much faster than waiting on a national-level “trouble ticket” to process. So today I once again found myself crawling on the floor under desks in a skirt, fiddling with…cables and computer equipment (you filthy bastards). And it was the only part of the day I didnt mind.  The only part I felt “useful”.

 I returned to prison after 4 days on parole, hiking in the woods with my dog and my struggling, unhappy boyfriend, CK. We think alike (I mean, CK and I. Although yes, perhaps my dog and I as well). And we are both martyrs for love. Judgmental and brooding, probably better off alone. I decided to burn what little vacation time I had accrued from this miserable job and disappear into the Quad State area (NC, TN, GA, SC borders). CK wanted to come so I sent him my proposed hiking list, based on limited time and weather conditions. He was an excited, “thumbs up!” But buying hiking shoes does not make you a hiker. Day one, we were only 6 miles into a walk in the woods when he began to fade, legs cramped, dizziness set in…I took his pack from him and force fed him protein bars, bananas, water and candy. I found him a walking stick but it was serious enough that I ran ahead to find a signal and called the nearest ranger station. I told them I just wanted to make sure I had a good number in case he couldn’t make it out on his own as we were still miles from the car. “Just keep puttin one foot in front of the other, he’ll make it out” the kindly ranger drawled. As CK leaned against a tree I told him, “Your lungs might give out, your heart might give out, but your legs will not give out. Keep moving”.

Days later, both his feet were taped and I announced I was going on a trail that he could not follow. Hell, he could barely walk. And I needed one day unencumbered. I climbed over rocks and fallen trees up a steeper incline to enjoy views unobstructed by tourists. Alone on a hilltop: me, my dog, and the wind.

I thought, “This isn’t working out”. I admitted on the drive home, I don’t want him tagging along to dances or hikes or shows out of obligation. Seeing the boredom and disappointment on his face kills my own joy. If he’d rather be at a movie then go to a movie! I don’t need company. I’ve been doing this living thing alone for years.
“I don’t need the added stress of a relationship!” I thought resentfully.

When you’re drowning, you cut loose of whatever weight you can forfeit: the job and school are not optional. Everything else – dancing, friends, family, boyfriends – those I can turn loose, at least until I finish school.

And I wish sex was off the table. I wish we’d never gone there; I wish we had just agreed to friendship. The pressure, the disappointment. I wish I could escape it.
“You’re tighter than a new buttonhole” he complains. I put on my best Gandalf impression and declare “You shall not pass!”  Or perhaps he can throw incantations at it, “speak friend and enter” my near-virginal vaginal gates.

He’s only had two rounds of GainWave and no change yet. His stem is still as broken as ever. I admitted to him, under these circumstances, sex means more work for me, and requires more time that I don’t have right now. So either I can slap on lube, get on my knees and give him a warm hole or he goes to bed hungry. And I’m starving but I’m a sexual camel and used to long stretches of abstinence. But I don’t ever want to fake it again. If only one of us is getting off, so be it.

At least for now.

But I’ve been saying that for months.

“I Wanna love somebody but I don’t know how” The Decemberists

File this under Insensitive Things My Boyfriend Says: when he remarks about being “jealous” that I sleep more than him even after being reminded that wasting half my life in bed from chronic fatigue is nothing to be envious of. Its like telling the guy who got his legs blasted off that you’re envious of his sweet wheels.

I called in sick this morning but not after a sincere attempt to get going. I got uo with the alarm, fed the fur, shot a 5 hour energy, felt sick to my stomach and dizzy so i sat down and immediately fell back asleep. Spent most of the day in bed amd every time my conscious surfaced, I told myself “get up, work on your resume, work on homework, take a shower, you need to go buy dog fiod…” but the current was too strong and sleep would suck me under again.

The night before I missed Cabaret rehearsal because I was upset from yet another shitty day in a shitty job so I poured a drink, then another until i was too buzzed to drive. I tearfully told my boyfriend that I appreciated him and sorry I didnt say it or show it enough. Then he pissed me off by saying something about getting hard. Erection jokes from someone with ED so severe, he doesnt come close to getting inside me arent funny. In fact last week, during another awkward attempt, he began shaking and crying with frustration. My heart broke and I told him, “Its okay, you can get me off some other way”. And I did something Ive never done with anyone before: faked an orgasm.

He’s on his second treatment of Gainwave therapy. I don’t know how many treatments are required to see results but of course insurance doesn’t pay for it. It will be worth it if it works. I disregarded all the hype and advertisements and went straight for the peer-reviewed medical studies. Those indicate about a 70% success rate. It’s significant enough that it’s being offered as a non-invasive alternative to heart surgery to clear blockages. That leads me to think it’s not complete bullshit.

And now halfway though our 5th month together, Im faking orgasms and wonfering if we should “take a break”. But that will just depress him and he will stop treatments. I want to give this a chance. Because there’s nothing “wrong” with this relationship other than the sex and my waning interest.

One of the women I currently work with reminds me of my mother, if my mother were Arabic. She likes to play matchmaker, coming over when a man is taking to me to say “Isn’t she pretty?” (To him. To me she says) “He’s such a nice guy and he’s single, are you single?” I reply “not by by 4 months”. Umi then shakes her head “Well, I hope hes a nice guy. You deserve a nice guy and THIS one is nice”. I look back at the guy, didn’t know a Latin complexion could get that red, and wonder if his dick works. Because I already have a nice guy.

“Would I lie to you, honey?” ~ Eurythmics

I remember as far back as 4 or 5, in preschool, where we were forced to take mid-day naps.  Of course now as a chronically sleep deprived adult, I’d kill for a nap on a slab of bricks. But as a child, I lay there on a pillowless cot surrounded by softly snoring children, wondering if I was the only one among them faking it? I got the “best rester” stickers but never once that I recall, actually resting. Last night, with CK beside me, I pulled out the old trick of pretending to fall asleep fast because I wanted to fall asleep. I didn’t want to mess around. I say mess around instead of “have sex” because we haven’t exactly had sex in my opinion. Going on three months. I just wasn’t in the mood, maybe from lack of sleep and that increasing anxiety that the E.D. is going to be a deal-breaker for us. I wasn’t in the mood to spend an hour working and being worked over with tongues and fingers. I know I’m not going to get mine. I know he will, although it takes a while. And I wasn’t in the mood to have my head petted or feel his fingers twitching against my face. Rest them there, grab me there, but don’t twitch indecisively, nervously. At least that’s the impression I get from it. When I’m irritable, which is often when I’m tired. And I’m always tired.

And I still don’t particularly care for the way he kisses when he’s trying to be passionate. I could try to describe what doesn’t “work” for me but what’s the use? Am I going start coaching him? Because all men love that. A little firmer please…no, too much…and can you do something with your hand, the twitching is starting to annoy…

I realize I’m nitpicking because I’m frustrated.

I love him. I even find him attractive. And the idea of breaking up with him feels very wrong. He’s a unicorn. A broken horn but still a unicorn and he’s mine. But I never want to be a married roommate. And speaking of…

What made it worse was popping awake a bit later to the sound of a small dog whining two rooms away. Except we don’t have a small dog. It was the girl my roommate was fucking vigorously. I could tell she was trying to muffle the moans but I lie there hoping CK was not lying awake listening to this too. He is wonderful and he deserves to get laid. I cooked dinner, I shaved my legs, but on this most important duty to my man, I opted out.

Because I’m tired? Absolutely.

But also because even when I’m aroused, I no longer think about CK because he’s never going to fuck me deep and hard up against a wall. Or in the back of a volkswagon or anywhere else for that matter. I’m convinced no pill will fix the twitching hand, tepid  kisses or the limp dick.

And I don’t know what to do.

“the stars are stacked against you, girl; Get back in bed” M.C.C.

Sex isn’t everything but it’s important. He lays there silent, occasionally petting the top of my head while I spent, I guess, 20 minutes working him over with my mouth and hands. My arm starts to tire when he tells me he’s cumming and I think “Oh, he didn’t fall asleep after all”. In past relationships, I usually gave a man 10 minutes of oral before climbing on top to take a turn for myself but with CK, I can’t do that because the E.D. has left him unable to penetrate me from any angle but the back. Which is great but I don’t want to spend the rest of my life only getting it on doggie style. Now going on the 3 month mark, I finally brought it up again and asked him to talk to his doctor. I don’t know how the conversation went, perhaps nothing more than a message to say “Hey doc, Viagra doesn’t work, what’s next?” So he got a script for Cialis. I don’t expect a miracle. Diabetes has caused significant nerve damage and I don’t see how a pill will fix that.

I love this man but I find myself dreaming of other men, literally. I always had an active imagination though. And it’s not as if I’ll go rabid from frustration, break up with CK and screw every swinging dick that looks my way. But I can’t live like this for the rest of my life either. And I wonder if we would be sexually compatible even if he didn’t have E.D. Because he talks a good game but when the time comes…maybe it’s a combination of both our anxieties: his not being able to perform and me, knowing I’m not going to get off either. It’s … increasingly frustrating and less and less fun.

He wanted to see me again today but it has been a thousand papercuts day. Starting with chores, trying to be a good citizen, move carts out of the road at the grocery store and smashing my fingers between them. Then long overdue yard work sapping me of what little energy I had to start with. Decided to head to the dog bar because I haven’t spent quality time with my dog in 2 weeks. He had fun but in my exhaustion, wasnt thinking and wore flip flops. My toes suffered five stampedes and I was taken out at the knee by a pack of racing pit bulls aka bulldozers. 90min later, came home, slipped and fell in a pile of dog shit. Five minutes later, broke a gallon of cold brew in the refrigerator. Amid a flood of expensive Puerto rican coffee and glass, my roommate messaged me to tell me what a blast the salsa/bachata beach party was today and that this guy I used to have a crush on (still do, I suppose) was there and flying solo.  I disassembled the refrigerator drawers one by one, pulling out all the food and containers, inspecting it, rinsing it off, saving what I could, tossing what I couldn’t.

After 9p, I realized I haven’t eaten. I also havnt finished homework. But I’m going to stay “fuck it” to both and go to bed.

“Oh, Saturday sun, I met someone…” Vance Joy

I think I met the love of my life when I was 41. Well, actually I was 24 but at that time, we were passing acquaintances and I couldn’t get past his prematurely silver and unfortunately long ponytail.

Now here we are, making out like teenagers on the couch and I whispered in his ear “You are going to be such a good dancer” which got a good laugh out of him.

He calls me “Hon”and “gorgeous” but I’mpet names. More or less 14 years of singledom left me out of practice in terms of endearment. I’ve called some exes “hotness” and or “pookie” (jokingly, obviously). But CK doesn’t have a fake tan (or a real one for that matter) no a douchey frat boy haircut, although he did cut off the unfortunately long ponytail years ago. So “hotness” doesn’t fit.

I could see myself marrying him but it would probably go down something like this: I email him a link to some ring with skulls on it and ask “So are we going to do this shit or what?”

I write that even as it still feels premature to say “I love you”. Although he has said it in letters and my inner dialogue says “I love this man”. Also I’m afraid if I break that “I love you” seal then it will turn into that habitual, afterthought, obligatory “I love you” and not as meaningful.

I may be paraphrasing or outright plagiarizing another writer (Fitzgerald or his wife?) when I say I’ve met the one with whom my heart and soul is at rest. Like a shot of bourbon on an empty stomach, he blooms in my Heart.

Sometimes he still asks “Why are you with me?” Because he leaves love letters in my underwear drawer and draws hearts on the windshield of my filthy car. And I save them in a shoebox or tuck them into a Bible that I no longer read.

Satan says “Brush your teeth.”

satan says brush your teeth

I don’t know why I think that’s so funny. CK shares my humor as we brainstormed a series of children’s books starting with “My First Black Mass” starring the Satans: Lucifer, Lilith and their horde of demon spawn, Azazel, Beelzebub, et al. The Satans get a dog. The Satans get divorced. The Satans are starting to sound like The Simpsons, I warn. It’s marketable alongside Daddy Darth Vader and “Go the Fuck to Sleep”. Hipsters will love it, with or without kids.  (PS – this blog serves as a poor man’s copyright).

This is the bond we share. But (his words) “this” has an inanimate connotation though so he prefers “us”. He cherishes “us”; The fumbling discovery and watching my face when I dance. “Even health setbacks have helped us develop in ways that matter”. That resonates with me. He resonates with me. As important as sex is to me, I acknowledge the science behind the it: the release of oxytocin during orgasm that deepens the emotional bond, perhaps binding people that should not be bound together, creating a false sense of love. And so CK’s erectile dysfunction, although frustrating, gives me the sense that this may be the purest affection I’ve ever had for someone, because it’s NOT chemically induced or enhanced.

When I consider my past, those careless, loveless lovers, I shudder and mentally anchor myself in CK. He’s the Cloak of Levitation to my Dr. Strange. I may be gifted but fallible as any human. Logical but finite. Good but not nice. I may be enough without him but demonstrably better with him.

And yet I continue to question how I’ll make this work. Not so much of question of “will it” but “how to do it”. Can I face the rest of my life with a man that cannot, pardon the frankness, penetrate me? Even with pills, I realize now that his dick is like the broken stem of a daisy and a finger curled stiff with arthritis. It will not, perhaps cannot, magically stand erect. I also joked that celibacy has turned my vagina into Fort Knox and it might feel like he is slamming his dick against a brick wall. As he failed to breach me, I joked sympathetically, “Most men would think ‘Great! She’s tight!” but he’s thinking ‘Aw fuck, she’s tight.”  His quiet devastation at not being able to fuck his girlfriend was palpable and all I could think to do was hold him and try to reassure him that I was happy just having his naked body on my naked body, which wasn’t a lie. But is that enough? I still wanted him inside me and my brain was screaming “Please, G-d, Universe, Karma, don’t do this to us…” I kept kissing him, encouraging, writhing, grinding, begging…until I came. Unexpected and sudden, I shakily announced “Well that worked”. “Really?!” he asked with…was it relief? Disbelief? Was this enough? I can be satisfied but for the rest of my life with what amounts to a lesbian sexual relationship? I don’t know. So how do we make this work?

” pull me closer if you think you can hang” M.I.A

Hes a good writer. Maybe even better than me. But as I’m the inspiration for his recent poetic musings, I dont mind that. And he has written for me the loveliest sentiments. I wish I had them on paper. Maybe Ill go back and transcribe them, as a reminder when the light goes out.
Because doesnt it always? She whispers and I glance down at the tiny, private spaceship tattoo that reminds me that I have suffered a lifetime of fleeting affections so why should now be any different?

But This time feels different. He’s different. I keep thinking of that silly eHarmony commercial about compatibility on a deeper level. I think they were probably just talking about shared beliefs on politics and parenting and I’m referring to how he measures up on paper (literally. Recall my List?) And our mutual goofiness as he calls it. Or maybe I’ve simply finally met my equal. I introduced him to my family and we haven’t even slept together yet.

Yeah, about that…

It doesn’t matter what I say about myself in an anonymous blog but I always hesitate to air something painful and private about someone else. But there’s no getting around it and there’s no sugarcoating it so I hope if he ever stumbles across this and takes the time to read it that he doesn’t judge me too harshly for it. So here it is: We haven’t been intimate because we can’t. At least not the way we would both like to. I don’t want to say that diabetes robbed him of his manhood but he might believe it. It has robbed him of the ability to get an erection and medication did not help in the past, he confessed. It affected him so profoundly that he hasn’t attempted intercourse in years. We had a grown up conversation about my needs and his health (as an aside, how refreshing to have candid conversations without judgement, tempers and hurt feelings!) And he has an appointment with his doctor this week to discuss treatment options. In the meantime, we just enjoy each other’s company and I no longer fret how slowly things are moving or question why he hasn’t throw me against a wall yet. I’m guessing he doesn’t want to start the engine until he knows he can drive. And I like him enough to wait. Although I can admit that when we do finally make it out of the garage, there’s the chance we may be compatible in every way except that one. And that would be a deal-breaker for me.

“Look kids! It’s a rocket!”

“It’s a cock!” Robin Williams aka “Rainbow Randolph” screams.

What took me so long to watch this movie? Maybe our tongues are not the only  “tastebuds” that change over the years. In 2002, it didn’t look like something I would enjoy but here I was alone on Thanksgiving night, cackling at the slapstick. At the end, I studied Ed Norton as he kissed his character’s girlfriend and thought, “Ed looks like a good kisser” so later, I found myself fantasizing and…you guessed it! Started bawling. Sobbing over how pathetic it is to be masterbating to something so ridiculous as Ed Norton in a rhino costume.

The next morning was no better as I opened my eyes to a message from an acquaintance lambasting me for my failure at friendship. It started the day before when she coldly turned down my offer to bring her a plate of thanksgiving food from my family’s house and ended with her telling me how I let her down LAST YEAR by offering to bring her food but showing up with it “too late”. I felt so shitty! I apologized profusely, asked how could I make it up to her, asked why she didn’t call or text to ask me to speed things up or even give me a specific time that she wanted to eat by… but she continued to attack and guilt me until I was in tears again. She is a widower with PTSD and I worry about her. I keep her name in a prayer box on my altar. But my emotional bandwidth was maxed and by days end, I posted “I am a failure at love. A failure professionally. And come to learn, a failure at humanity. To everyone I’ve failed, trust me when I say I’d lay down my life if it would improve yours. But why would you trust someone who failed you…?”

A friend tried to put it in perspective and said “It’s never okay for someone to deliberately make you feel bad for trying to do something good”. He’s right but it doesn’t mean I am blameless in the failure department. Reflecting over a few days, I made a difficult decision to drop her from my contacts. I cannot be a lifeline for any more people than I already am currently and I certainly can’t be one for someone who inspires me to stick a barrel in my mouth. Although I did remember to unblock my Asshole Best friend a month ago so I’m not running from everyone.

“I’m asking you, Mary, please temper my hatred…” Liz Phair

There is something so satisfying about slow roasting a pig, stabbing it with a syringe full of coke (cola) every half hour, then torching it to a crisp. What can I say? My Jew-“ish” family likes swine.

But there is still something unsettling about this time of the year when the sun squats lower in the sky. December in particular is the anniversary for compounded personal horrors, unexpected deaths and the end of every significant romantic relationship I’ve ever known. So I’m wary. When i dare admit out loud that I feel good lately, I glance around nervously waiting to get mugged again by Fate.

Do you ever go back and read horoscopes AFTER the days have passed and think, “Oh, so that’s why I flipped out”. Actually, I usually blame hormones, premature menopause, for everything but the moon may have a hand in it too. I’ve felt liberated since last week’s “The End.” I stepped outside tonight and noticed just a sliver of moon. So it was a new moon when I banished him for good. I didn’t even realize.

I won’t lie, it gets a little maddening to listen my best friend “S” talk about how much he misses his ex. He spent a decade in a loveless, sexless relationship so the first person to throw him a hamburger after he’s been starving is going to look like his savior. But it’s not all about “her” – she was horrid- he just isnt content coming home to nothing but his dog at the end of the day. He dwells, obsesses, about his need for human companionship. I think, “Sure that would be nice but it should not define you”. I’m a broken record reminding him we were born a whole person, we will die a whole person. We do not require two people to make us = one. Tying our self-worth to another person is about as healthy and sane as tying our worth to how much money we make. Forget the Disney programming! It’s the idea in his own head that if he is single, he’s worthless. I agree with him that so called “family days” at work suck. A professional environment perpetrating what our personal lives “should” look alike. If you wanna shove your kids and spouse down my throat when I’m at work then I should be allowed to bring my dog. But my friend cries because he’s truly depressed at work on family days. So I asked him if he is the only person there who doesn’t show up with a spouse in tow and he admits “no”, he’s not the lone pariah. I told him then make it ridiculous! Designate a table, a whole section for everyone who do not have family on family day. Cuss and drink beer! Talk about getting matching “Enough” tattoos. Make it a sort of silly protest to draw attention to the fact that family days at work alienate solo employees.

The truth, is having hit this wall again, being truly done with a relationship, I don’t want to talk about it anymore. And now that I no longer contribute to the pity party, I find my patience wearing thin with my dearest friend who refuses to move on. Some nights, I serve tough love for dinner. It’s cold and doesn’t taste half as good as Revenge. But if he insists on rehashing the same stories and woes over and over again, then I insist on dishing up the same response: Get over it.  Our ex’s have.