“I just wanna be somebody to someone” – Banners

The booty call, I don’t even think I can call him that since we only hooked up twice and it was several months ago, went swing dancing for 5 hours last night followed by an additional 2 hours of salsa at another club. I had considered going to both dances and ultimately went to neither. I was so anxious to get back from Montana to dance and return to a “routine” and yet I’ve been back for 3 days and have done Jack and Shit.

I purchased books in the airport, one on Winston Churchill (I’m a history buff and a closet fan of that complicated man and the era he led in) and another book of recently published scraps of stories and plots from F Scott Fitzgerald ( and it may forever remain unbeknownst us how much is plagiarized from his wife). I remember a time when I devoured books and now I can’t remember the last one I made through its entirety. It’s not that I’m disinterested, it’s that I struggle to focus. It doesn’t matter the content, my attention Trails off after a few pages and then I can’t recall what I read. As if I can’t even comprehend the words on the page. What is wrong with my brain? How will I ever find another decent job if my mind is mush? And I’m pretty sure I blew both interviews this week. One for saying the wrong thing out right and the other, the dreaded brain fog or hiccup, words escaping me all together. I used to be unfailingly articulate. Now, its as if English were a second language.

” you don’t know how it feels” -TOM Petty

I realize as far as lyrical quotes go that one is pretty weak but it was the first one that popped into my head under the circumstances.
Those of you suffering with MS, Hashimoto’s or any other disease who’s list of ailments include chronic exhaustion, I know you’ll understand. I get so irritated when I tell someone I fell asleep at 6 p.m. and slept until 9 a.m. the next morning and they comment on how “jealous ” they are that I got so much sleep or how “lucky” I am to be able to go to bed so early…they misunderstand. I didn’t go to bed before Sundown or lose 15 out of 24 Hours by choice. My body shut down. I could neither cognitively or physically function because I HAD  to sleep.   I miss having a normal life,  dancing in the evenings, watching game of Thrones Sunday night. Now there is barely the space of an hour between sleeping and work. But hey, I’m the lucky one.

“My thoughts were so loud, I couldnt hear my mouth…” ~Modest Moust

“I still haven’t gotten anywhere that I want.
Did I want love? Did I need to know?
Why does it always feel like I’m caught in an undertow?

The moths beat themselves to death against the lights.
Adding their breeze to the summer nights.
Outside, water like air was great.
I didn’t know what I had that day.
Walk a little farther to another plan.
You said that you did, but you didn’t understand.

I know that starting over is not what life’s about.
But my thoughts were so loud I couldn’t hear my mouth.
My thoughts were so loud I couldn’t hear my mouth.
My thoughts were so loud…”

Just days after surgery, what did I expect? A miracle, I admit. But even after plucking a rogue, swollen parathyroid gland from my chest where it had migrated, nothing has changed. Nothing. I dont feel better, improved. It could take weeks, they said. It may not even work, is what they didnt say but I had read.

So I wait with a fresh scar across my thickening neck.

I dropped off Facebook for a bit. Needed to. I found myself resentful of the health and happiness of others. Everyone has someone, it seemed. I struggle alone in this house. I finally got a new roommate but he wasnt as advertised. He’s never around and he’s not a friend. He ran off to Atlanta to be with his on-again rebound, a thin, age-innappropriate 20-something bitch in every sense. And this Ive learned from him. But he ‘loves’ her inexplicably and unconditionally. Fool for a young, pretty face. Do I sound jealous? Maybe I am. I want someone to care about me. I may not have been happy but I was at least content before he moved in. He bleeds what little energy I have left and generally, of no conscious doing of his own, makes me feel worse about myself. He is an emotional vampire and I generally suck at shielding because I cant stop caring about those who dont care back. So it’s better that he’s not around. But he didnt even bother to send a message to ask how surgery went. As I said, not a friend.

Thank G-d I have one or two close friends who check in on me daily, ask how I’m feeling, just remind me that I am in their thoughts. Still, I could use some physical help. An extra set of strong hands. Someone to tackle the back yard with the lawnmower. Or just to take those strong hands, place them on my cramped, pained shoulders and PUSH DOWN HARD. Like an anti-shrug. Not a massage. Nerve damage means massages feel like a hornets nest that has been kicked under my skin. But firm pressure to break up the tightly woven fascia or a bear hug to crack the part of my back that I cant reach would be nice. Really, just a hug in general might be nice. Shit, I’d probabaly start sobbing like a baby if anyone touched me.

I was always a caretaker. Working the pressure points in the FOot, scalp, hand, back. I miss having someone to take care of but these days, I wish I had someone to take care of me. Someone who doesnt ask but just “does”. Because I dont ask for help.

There are several dance events this weekend and I was hopeful but I know now that was overly ambitious. I still hurt. I’m still weak, exhausted and in a fog. Coherence is still a challenge. I get frustrated and depressed in my failure to communicate effectively so I shut down, too tired to continue trying. I could die here and it would be days before anyone realized it. Here she lies: uninspired, she just gave up. Because she didnt care enough about herself to push her way out of bed. And then what? Go where? Do what? What doesnt HURT?

Dont tell me to stop feeling sorry for myself. It’s already on the menu. Self pity is the gravy over the self-loathing that I feel. Or is it the other way around?

I didnt want to live to be old enough not to wipe my own ass but neither did I think I would fizzle out like this. I couldnt watch “Seven POunds” the other night. I read the synopsis though. Then I asked my mother how long a body had postmortem before it’s parts were cooked and unusable. Not long at all. In fact, unless you die in the hospital (or a bathtub full of ice while on the line with 911), there isnt much that can be recycled. And for a moment I had this comforting thought that I would leave nothing wasted but my fingernails.

G-d, and the boredom…I catch myself staring at the floor wondering if I can knock out just 2 push ups without the sutures tearing out of my neck. I don’t take kindly to limitations.

Low-grade pain is a constant current that never disappears completely. Like water dripping on your forehead ceaselessly, it’s maddening. It saps your desire to do anything but go back to sleep.

Sleep. Or company. I havent got the latter so I’ll choose the former.