” you don’t know how it feels” -TOM Petty

I realize as far as lyrical quotes go that one is pretty weak but it was the first one that popped into my head under the circumstances.
Those of you suffering with MS, Hashimoto’s or any other disease who’s list of ailments include chronic exhaustion, I know you’ll understand. I get so irritated when I tell someone I fell asleep at 6 p.m. and slept until 9 a.m. the next morning and they comment on how “jealous ” they are that I got so much sleep or how “lucky” I am to be able to go to bed so early…they misunderstand. I didn’t go to bed before Sundown or lose 15 out of 24 Hours by choice. My body shut down. I could neither cognitively or physically function because I HAD  to sleep.   I miss having a normal life,  dancing in the evenings, watching game of Thrones Sunday night. Now there is barely the space of an hour between sleeping and work. But hey, I’m the lucky one.

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